Lecture 7

1. Focus on important things

2. Appreciate life

3. Change perspective

4. Decrease risk for complicated grief

5. Give peace when confronted with illness

1. pain and other symptoms

2. Emotional & social problems

3. Practical problems

4. Big decisions

5. Spriritual questions (finding meaning, hope and connection)

6. Dying with dignity

1. Illness related problems

   1. Independence

   2. Symptom distress

2. Dying-concerned

   1. Perspectives (hope, pride, acceptance)

   2. Practices (mindfulness, finding spiritual comfort)

3. Social dignity

   1. privacy,

   2. Support.

   3. Aftermath concerns

• practical help

• Emotional support

• Coordinating medical appointments

• Paperwork

• Personal tasks (hygiene or eating)

• Help with mobility issues

• psychological

• Physiological

• Social

• Financial

1. the characteristics of the cared for

2. The carer

3. The relationship

4. Shared and discrepant beliefs

Benefit from post traumatic growth

1. improved relationships

2. discovery of possibilities

3. Discovery of personal strengths

4. Spiritual change

5. Appreciation of life

1. Micro

   • Child related (aggression of behavioural challenges)

   • Parent related (acceptance and worries about child’s condition)

2. Meso

   • Withing family (financial issues, marital issues, jealousy of siblings)

   • Within society (stigmatization, discrimination and isolation, lack of social support)

3. Macro

   • Health care related (not taken serious before diagnosis, waitlists and lack of care after diagnosis)

   • Educational related (unavailability of appropriate education and opinions of teachers)

   • Other services (scarceness of leisure activities, accessibility of leisure time care

• Spritual & Regigious coping

• Emotion focused coping (accepting, positive framing or denial)

• Problem focused coping (search for information, rely on professionals)

• Social support

• Self-compassion

• Mindfulness

• Gratitude

• Acceptance and commitment therapy

Delivery:

• Online

• Face to face

Problems:

• Lack of larger RCTs

• Lack of follow-up insights

• Focus mainly on mothers